Sophia Hotung Shines Light on Invisible Disabilities at TEDxTinHau Women
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Writer and illustrator Sophia Hotung is a familiar face in Hong Kong through her dedicated work raising awareness for people suffering from invisible disabilities and chronic illnesses.
Sophia was a typical brace-wearing, glasses-toting teen, until her health took a hit at 16 when she was diagnosed with autoimmune hepatitis. The illness pulled her out of school for a year, and she later got diagnosed with seven chronic illnesses, including celiac disease, which often left her feeling isolated in a city where gluten-free dining is a challenge.
Today, she advocates for people suffering from invisible disabilities and chronic illnesses, selling her artworks to raise funds for affiliated charities and giving talks in the community and schools.
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Despite her health struggles, Sophia is a prolific writer and illustrator. She has published her fourth book, “The (Unlikely) Hong Konger,” just in time for Christmas.
This is the fourth in her “The Hong Konger” series of eye-popping prints which examine the city’s unique melting pot of international and local scenes through a satirical, celebratory lens, while parodying The New Yorker magazine covers.
"The (Unlikely) Hong Konger" includes Sophia Hotung’s original collection of 100 artworks from "The Hong Konger," along with 12 exclusive previously unseen pieces. Part narrative about her life, part artwork, this compilation showcases the quintessential yet often overlooked scenes of Hong Kong.
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At TEDxTinHau Women 2024 this year, Sophia will be sharing the stage with Jessica Chan, an advocate for gender and disability equality who was born with Achondroplasia, a form of dwarfism, for a joint talk on invisible and visible disabilities, in relation to this year's theme: “In Motion.”
Sophia sat down with The Beat Asia to share what we can look forward to at her upcoming TEDx talk, the challenges of living with an invisible illness, and the exciting release of her new book.
You will be sharing the stage with Jessica Chan, who has a visible disability. What topics will you be touching on in your talk with her?
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Jessica and I didn't want to be seen as a monolith, but at the same time, this is an opportunity to flag that the disabled community is very diverse. Jessica looks visibly different – but she’s a major player in her company, does HYROX, and just came back from an extreme surfing holiday.
Meanwhile, I look like I can work out, and look pretty normal, but if I'm walking around for a day, I need three days to recover from that.
Jessica and I also differ in our choice of language. She prefers the term “differently abled” to disabled, and I prefer "disabled" because I feel very disabled.
The main idea that we've discussed for this TEDx talk “In Motion” is the idea of progress; developing new ways of pushing forward an inclusive disability agenda, especially in Hong Kong, as it has some backward and prescriptive views still. There is a lot of awkwardness or uncertainty about how we go about talking to disabled people.
So, we've got a few takeaways on what we would recommend in this talk. Not necessarily blanket advice because everyone's different, but something that I think can apply to most cases.
What falls under this umbrella of invisible disabilities?
It's really hard to put things in boxes because there are so many different diagnoses. But [an invisible] disability is any health condition that makes getting through an average day harder but is not apparent. Autism is a good example, or lupus.
That said, I like to leave a label more up to the individual. It's really no one's job to force someone into coming out as disabled. It’s a process that everyone has to take in their own stride.
What can members of the public do to support people with invisible disabilities?
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I really think that language is an easy fix. When you see someone with a disability, your immediate response doesn’t have to be pity, patronization, or pandering.
You don't need to sugar coat it, or be super optimistic, but you also don't need to be miserable about it. We just get on with our days and see it as any other neutral part of our identities.
So a big push in the talk is just this idea of see, disability is neutral and that will change a lot about [working to be more] inclusive.
What role does art play in your life and as you deal with the challenges of your illnesses?
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My first art collection, "The Hong Konger" started as a joke because I was bored in bed. There were no cures and I couldn't go back to work, so I was drawing to pass the time.
I've been through the Hong Kong school system – it’s very competitive academically and to finally have something that had no compass, rubric, or grading system [finding a creative outlet] was very refreshing after so many years of exams.
When you keep doing repetitive movements and find yourself slowly getting better, [having] things in your head that you can produce with your hands [offers] a real feeling of control and satisfaction, especially at a time where I felt like I had no control over what my life would become. That was very powerful.
It doesn’t have to be art that you express yourself through, but any hobby can be very helpful, especially when you're dealing with a new limitation that feels like it's the end of the world.
Can you share more about your company Pangolin Society with us?
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From day one, when I started making art, people were asking for free art, and I was burning through the money I had made in my last job. I had charities asking for free stuff, so I tried to come up with a way where I could make art, but both charities and I could profit from it.
I teamed up with this charity called Equal Justice Hong Kong, which provides legal support to people who normally can’t afford it. I made them three artworks, and we agreed to split any profit 50/50. This would compensate me for labor and resources, but the charity also got 50% of the sales, and they have ownership rights to the art, which means they can put the images on a tote bag, put it on a mug, etc.
Pangolin’s mission is to find strategic ways to fundraise that is profitable for all parties. I haven't perfected this yet, but I do think there is a model here for a way of working with charities that is sustainable for artists.
The (Unlikely) Hong Konger is a beautiful book combining narrative with illustrations. How did you come up with the concept?
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It’s about growing up in Hong Kong, and how my accidental art career spawned, that’s what gives it the name: "The (Unlikely) Hong Konger."
The history of Hong Kong has played out in an unlikely way. Everyone thought Hong Kong was never going to be a functional city, because there’s no water on the island, there’s no arable land, and yet, here we are.
This theme runs through the book, whether it's related to work, illness or Hong Kong itself. This idea of the art industry and COVID-19 pops up in there as well, and how people dealt with it in different ways.
The overall message of the book is that things never go according to plan, but there's a way to handle the punches.
If you look only on the right side [recto] of [its spread], it's an arty coffee table book. It has all the Hong Kongers and a few extra ones that I threw, but if you look on the left side [verso], its dramatized and reads like a novel. But it's the true story of how I started being really sick.
What advice would give young people who are exploring a career in art?
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Even if you are embarrassed to put your art out there, you should still make it, because it can always come out later when you're an adult and you’ve gotten over the embarrassment. It’s cool, productive, and it's all part of the journey.
Catch Sophia Hotung at TEDxTinHau Women on Friday, Dec. 6, 2024 at Xiqu Centre in West Kowloon and at her book signing of The (Unlikely) Hong Konger on Dec. 7 at Kelly & Walsh in Pacific Place.
Stay connected with Sophia on her website, and follow her on Instagram, or Facebook. For more information, visit TEDxTinHau Women 2024 on their website, Facebook, and Instagram.
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